An Alzheimer’s & Family Update

Some of you may have noticed that I have been around our blogging community less, perhaps noticeably less. You would be right. That has been the case for some 3-5 months now, I’m unsure really. Here’s why… well, several reasons why.

Life. And…

Immediate family, specifically my Early Alzheimer’s Mom and unfortunately and negatively my 61-year old sister.

Mom

Much of what I’ve been having to do to care full-time/overtime 14-16/7 hrs. per day, 365-days the past near four years for my Mom has been covered in these previous three blog-posts: Click here for the first post, then the 2nd and 3rd are all linked together after.

No surprise, she has declined a little more since my last Alzheimer update-post in November 2023. Hence, my free-time to write blogs, comment on blogs I follow, or explore new blogs I’d enjoy has gone by the wayside to this present day.

Mom has now reached the point where cognitively and physically she cannot and/or is unable to help me do anything at all around our apartment. None of the daily or weekly chores for both our bedrooms, the bathrooms, the tub/shower, cleaning the kitchen daily 2-4 times per day, preparing two meals a day, all the grocery weekly/bi-weekly shopping and pharmacy trips, vacuuming and mopping of the apartment, caring for all the plants inside and outside as well as my herb garden outside—all of which are dead now and most are dead inside—and the chauffeuring to quarterly or biannual doctor appointments; she no longer drives.

Regarding my hard work on my herb garden, roses, and gorgeous geraniums outside last year, this past summer, autumn, and now winter has been utterly brutal on all outdoor plants/gardens. In the summer last year we had one of the worst infestations of huge tan-brown-green grasshoppers that devoured everyone’s plants. Some huge grasshoppers were at least 4-inches long. Extreme boiling temps in the day and extreme frigid temps at night doomed my 2024 efforts. On top of this unmitigated garden disaster, for 8-days straight I was so deathly ill I could not get out of bed, ever. I struggled bad to walk to the bathroom. I never ate during those 8-days. Consequently, all the indoor and outdoor plants suffered horribly.

One of my top priorities this late January is reapplying for her Long-Term Medicaid assistance for her eventual admittance into a full-time Assisted Living Memory Care facility where here in the central Hill Country of Texas are all extremely expensive, between $4,800/mon. to $7,300/mon. Most are private pay only. I must get assistance for this third reapplication as I learned the hard way last year—by ending up in the hospital for four nights back in late June—by a Medicare family consultant to guarantee that Mom gets approved. She does incredible work and has tons of experience in this hyper-complicated politicized out-tha-whaa-zoo process here in Texas. That was part of the reason why I ended up in the hospital with serious heart and stress-hypertension problems.

Concluding with Mom I have this comparison…

I was a stay-at-home Dad when my son was an infant until he turned two and my daughter at the time was 7- to 8-years old in elementary school. In 1999-2001 I was the stay-home parent during the day when their mother (my ex-wife now) was at her 8-9 hr. job in downtown Dallas. We lived at that time in a nice starter home in Carrollton, Texas. When she returned from work, and I had dinner ready and homework done, I went to my graveyard shift security guard job at 7:00pm until 7:00am the next morning. I did this for 18-months. By far the hardest jobs I have EVER had in my life!

Now, since August 2021, I am caring for—for all intents and purposes—my last 4-year old child… Mom. Literally. The huge difference, however, between my stay-home-Dad days/nights and right now since August 2021 is that I have been and still am “A One Man Show and Bad Dance.” Back in my married months/year I at least had a wife-partner and parent. Not this go round. This is harder than those 18-months, much harder. The “end” of this rough go will eventually be very different.

My Sister and Her 48-Year “Disease”

As a footnote to my header up top, my sister now weights over 275 lbs., not that weight in the Xmas 2014 picture. And that is the least health problems she has at present.

My 61-year old sister is also a Schizoid-affective Bipolar of about 25-30 years with regular bouts of very manic behavior. She is also a 48-year drug addict and alcoholic. And she also has poor judgement, cognition, and temperament or composure in stressful environments, all due in part to her psychiatric diagnoses. She is also presently on about 6-7 various psych meds daily. There’s the introductory details of what I must often help with, manage, or try to stop the hemorrhaging, as it were, when she has a psychotic meltdown.

On October 9th through October 17th, 2024, she had a major meltdown on me that involved her calling the police department on me—for a 2nd time that year, first in Feb. 2024—and became physically violent toward me inside Mom’s and my apartment almost breaking down or through my locked bedroom door. However, this was after her public meltdown with me at Western Union inside the local Walmart. If you are not familiar with psychiatric-psychologically dysfunctional people with a long, long history of disorders, eight prior felonies, prior addresses of residence that include over 25 Halfway Houses & Shelters, homeless 3-4 times under highway overpasses, and a long list of low-wage jobs that are longer than an encyclopedia… then just believe me when I say this: During those breakdowns/meltdowns, it is pure chaos and a rollercoaster of manic behavior sometimes lasting for over 10-12 hours without medication or in some cases until she is arrested by law-enforcement.

Then also imagine the stress, distress, crying, and emotional exhaustion she puts my elderly Mom through each episode, and you have a slight glimpse of what Mom and I have dealt with since 1978.

Should any of you wish to read the email (Page 1 click here, pg. 2 click here, short pg. 3 click here) I had to send to my sister about this latest 9-day/night psychotic meltdown on me—she was impossible to speak with civilly or maturely and logically those days and nights that I had to get a hotel room 2-nights when she wouldn’t leave Mom’s apartment—so consequently we have yet to speak to each other either in person or by phone or text message. She’s been and still being a royal, immature, asshole to me over a situation I had no control over whatsoever. As is often the case with arguing family members, the initial issue and subsequent meltdown at Walmart had to do with money, her portion of money Mom said she could have from the sale of Mom’s 2007 Toyota Avalon XL Sedan that I had completed after 4-months listed, all by myself, on Oct. 5th, 2024 for $7,600. The rest of the insanity is available via the “click here” links above.

∼ ∼ ∼ § ∼ ∼ ∼

Therefore, the moral of my quick post here is that my “free-time” has been slipping further away the last 8-26 months as Mom continues to decline, my workload in everything around here increases because I have zero help—with the small exception of Mom’s professional hospice team that visits 3-times a week for 30-40 minutes at most, not on weekends or holidays—and my sister with her horribly shitty attitude and refusal to help out with Mom, much less help me with Mom with anything simple… just eats up every bit of every day now. And it doesn’t appear to be changing anytime soon.

My apologies my friends and followers. It is the hand of cards I’ve been delt for the moment. 🤷‍♂️

The Professor’s Convatorium © 2023 by Professor Taboo is licensed under CC BY-NC-ND 4.0 

17 thoughts on “An Alzheimer’s & Family Update

  1. Damn Prof, that a hell of a load to carry. I truly wish you the best man. I can relate a bit to your situation. As it turns out I was married to a schizo effective disorder/bi-polar/depressed type with my first wife. None of that shit showed up till we were 2 kids in. It became the sort of nightmare I can’t even begin to describe. She committed suicide a good while back, both adding to the nightmare and ending it…

    Add to that, my mom is a shell of a person, living in a nursing home, with the 1000 yard stare. She’s long gone all but for the living. Don’t know how much longer she can last. But nobody is home, we know that.

    So, while I can’t exactly compare my situation to yours, exactly, I know enough of it to know what kind of hell you’re living in. I feel for you brother. I do.

    Liked by 2 people

  2. From my own comparatively very, very minor experiences I can grasp in part the sheer weight of the toll all this must be taking on you, and marvel that you are still able to find some time to share with us.
    It is very important to share,- it does ease of the anguish by getting the pain and suffering out there, alerting folk to how damn difficult and unfair life can be.
    I will be thinking of you.🙏

    Liked by 1 person

  3. Sounds to me like your best option — as disagreeable as you and your readers might think — is to run away and let things sort themselves out. I know it sounds inhumane, but if you are not healthy you can take care of no one, and right now you are not mentally or physically healthy. You need to take care of No. 1, which is you. I would write to your mother’s doctor and tell him you are uaving a mental breakdown, and that you are no longer able to care for her. She needs more help than you are able to give.
    Your sister will have to deal with her own situation. She is using you as a scapegoat to avoid managing her own affairs, and if you let her continue you will burn out, and then what?
    All 3 of you will be up Shit’s Creek without a canoe! No it is not the best choice, but it is the only choice if you want to survive.

    Liked by 3 people

      • But Nan, rawgod, by doing that last part you suggest rawgod, I then do exactly everything my sister did Oct. 6-17, 2024 that I listed in that 3-pg linked email to her… which is skirt any and all family responsibility or human decency. That’s just not in my DNA to do something that horrible, especially to my Mom! It never crossed my mind that I’m making myself a martyr.

        Like

        • I don’t think either of us are labeling you as a martyr, but it is more than apparent the situation is taking its toll on you. Being a good brother or son does not mean sacrificing your own well-being!

          From my personal perspective, the care of your mother is not something you can walk away from. However, I do think rawgod made a good suggestion about contacting her doctor and explaining YOUR situation.

          And your sister? She made her own bed. I know you love her, but ask yourself … does this mean sacrificing your own wellbeing by allowing her to take away YOUR health and happiness??

          Liked by 2 people

  4. Pingback: My Joyful Escapes | The Professor's Convatorium

  5. Oh Professor! I have no words for all that you are and have been going through. My heart goes out to you, dear friend. I wish I had wise and comforting words, but I don’t, so just know that I care and will be thinking of you.

    Like

  6. Just found this. Oh my dear man. My mother had alzheimer’s too, and being the only child, it was up to me to deal with her. So I do understand the endless hopeless stuff you’re taking on.

    And yes, Frost was right. You can’t skip this, it’s something you have to get through. I’m not going to tell you you’ll be a better person for it, that’s crap. And to have two of them coming unglued at once, well, I agree, you have just so many hands and there is no sense in losing yourself in all of this. My mother was a narcissist (and they commonly develop alzheimer’s), and I learned early on to just put up a mental wall between her rantings and my brain…

    The important thing to remember: it’s not your fault, and it won’t last forever. (Can you get her into a hospital somewhere? )

    Liked by 1 person

    • Aww, thank you so much Judy for this kind compliment and encouragement. 🥰

      (Can you get her into a hospital somewhere?)

      I’ve deduced over our many discussions over at Ark’s and Nan’s blogs that you are not residing in America, much less Texas. 😄

      Here in the States, especially this super hardcore Red-Republican state of Texas, it is literally “DIY until you are 125″… years old. I shit you not Judy. And my Mom and her late 2nd husband knew this shitty, economic, self-cannibalizing money-making model of the U.S. and Texas back in 1995. They totally prepared for their later elderly years inside an Assisted Living facility! They took out long-term care insurance policies for themselves in 1995 specifically with this in mind, anticipating (for the obvious) that “elderly healthcare” would cost tons of money in the 2000’s, 2010’s, and 2020’s. Today, Mom has accumulated over $115,600 on her policy paying in since 1995.

      Today, that is nowhere NEAR enough for Central Texas (Private Pay) Assisted Living Memory Care facilities here!!! 😧 Over 90%–95% of all nursing homes in central Texas refuse, will not accept any Medicare or Medicaid; all private pay! I have now tried 3-times to get Mom onto long-term Medicaid to assist with the exorbitant costs of elderly care, but every application Texas considers my Mom too effin wealthy. 😡 I cannot get her accepted on Medicaid because she did too damn well financially all her life paying into this royally EFFED UP economic system we have here in the States and in Texas. 🤬

      Like

Leave a reply to rawgod Cancel reply