As some of you know or have noticed over the years, I am unable to post on a consistent regular basis as I once did my first decade on WordPress. My commenting and participation on other blogs I enjoy following, sadly has become very limited as well. If you are fairly new to my blog, visiting, or browsing WP, the reason there are much fewer posts is due to my Mom’s Stage 5 Dementia, which is really now well into early symptoms of Stage 6 with fewer mixes now or crossover with Stage 5.
In my December 2021 post about her cognitive decline I listed and briefly explained all the various stages. As of 2022, it seems the general consensus of all the seven stages are known and what the adult children of parents with dementia, or early onset Alzheimer’s Disease, can expect. Here is Stage 6 according to Dementia.org:
Stage 6: Moderately Severe to Severe Dementia
“When the patient begins to forget the names of their children, spouse, or primary caregivers, they are most likely entering stage 6 of dementia and will need full time care. In the sixth stage, patients are generally unaware of their surroundings, cannot recall recent events, and have skewed memories of their personal past. Caregivers and loved ones should watch for:
- Delusional behavior
- Obsessive behavior and symptoms
- Anxiety, aggression, and agitation
- Loss of willpower
Patients may begin to wander, have difficulty sleeping, and in some cases will experience hallucinations.”
Mom shows all of those four bullet-points now, although three of the four on some days and then perhaps two of the four other days. But there is always at least two of four every single day. She definitely needs supervision at minimum 12-16 hours per day with some of that time (1-hr at most) a “check-in” or Q&A time sporadically with her throughout the day to gauge how she’s getting along.
Friends and neighbors sometimes ask me how I am doing, how I’m managing my own health and social needs. Apparently, Caretakers of elderly parents with dementia or Alzheimer’s are often overwhelmed in a period time if they receive no relief, no break for themselves and don’t become well-informed of the two diseases. Another thing I’ve heard from the support-group I attend once a month is that the role of caretaker is usually a thankless job/role. Since late-stage dementia is basically early Alzheimer’s Disease, Alz.org lists Ten Symptoms of Caregiver Stress. I currently tick 9 out of 10 symptoms. The biggest reason why? I’ve been going non-stop, no break, every single day and night as her full-time, live-in caretaker since mid-August 2021, or over 47-weeks straight with no respite.
Back in late April of this year I was supposed to get a much needed 6-day, 5-night vacation up in Dallas, my hometown where all my good friends still live. We had several plans made and fun, exciting things to do, dancing, umm… and maybe some drinking included! 😉 But here’s what happened that week/weekend that changed everything: In Memoriam to My Brother. Hence, no real vacation for me at all. I spent the vast majority of my time at the hospital sitting with James, followed by waiting (alone) in my hotel room some 4-5 days and nights for decisions and details about his funeral. I had no motivation to go out alone or with friends; I wasn’t great company then anyway.
So yeah, over 47-weeks now and still counting.
Meanwhile, Mom and I march on, day-in and night-out, fighting a cognitive disease that takes a little more brain-space from her than we can actually replace or take back. But we do have our victories here and there. That’s when Mom wants to celebrate big with either glasses of her Pinot Grigio or I make a pitcher of my world famous El Presidente margaritas, which have a good patada de toro to the ass or head, whichever it reaches first. Hah! 🍸🥳 These are our cherished good times and there will come a day when they aren’t possible. And so we enjoy them thoroughly, when we can, and at length for sure. “Do you know what I mean?” 😍
Live Well – Love Much – Laugh Often – Learn Always
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